Daniel was three months old here, Melody three years and three months. This was pre-seizure, before any sort of idea about what Daniel's "delays" would be. Just the knowledge that he was microcephalic, his vision wasn't developing normally, and he was not behaving at all like his sister did at that age. The mantra then was "wait and see". Nervous days of hoping, praying and fearing.
Yesterday Daniel had more seizures. I'm thinking now that the illness earlier in the week wasn't a virus, but a result of seizure activity. His seizures first manifested in 2000 with a lot of vomiting, to the point where the docs initially thought it was all GI and didn't order a neuro consult. Throwing up has been a feature of the Big Ones ever since.
I remember sitting in the hospital room waiting to see a neurologist, and when we asked about it the nurse told us the consult hadn't been ordered! It was 4 0'clock, and since Daniel's dad is a doctor (physiatrist, specialty is head injury) he insisted they get on the horn and we had the team there before 5. Daniel had an EEG the next morning, and performed his seizures on cue. (His swallow study, ordered because on-call doc was insistent it was his digestive tract that was causing him to go limp and unconscious, was normal.)
He's been well controlled for so long with Topamax that this new crop of activity has me worried. He's in puberty, and I know the risks for kids similar to Daniel when the hormones start pumping. I'm prepared with Diastat, Klonopin and praying friends and family.
I like the way Melody is leaning in and embracing her brother in this photo. She's been right there with me all week keeping watch. God, I love them.
3 comments:
Very, very precious...happy mother's day!!!
Hope you had a beautiful day and so hoping and praying that Daniel's seizure activity can ease up, or better yet, stop. Hate to hear he is struggling.
Thank you, my friends.
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