It has been such a peaceful week. Melody is on her pilgrimage with the youth group to PA and NY, and it's my last week off before going back to work for the summer school session. We haven't done much in the way of exciting stuff, but everyday has been good.
It might be due to the Zantac, or the alignment of the moon and stars, but Daniel has been calm and happy all week long. We've had a lot of doctor's appointments and errands to check off the list. He's smiled through all of them.
Tonight Rich and I had crab legs at a favorite restaurant on the beach while Daniel hung out with his caregiver for a few hours. He loves that woman. He hadn't seen her all week because we were out of respite for the fiscal year, and when she got here his face lit up.
Good news came our way today, too. We've been approved (after two denials) for personal care attendant hours for Daniel. It took some fighting, mostly on our caregiver's part, but we beat the system for once. Someone at Medicaid told her that she and I should be poster people for getting an approval with the new agency in charge, because so far all they've seen are denials for PC.
Life is good.
4 comments:
Delighted with your good news: people need to know that you can 'beat the system' and get what your child and your family need x
Thanks! It really felt good to have that happen. In Florida there's a waitlist for the medwaiver, and we were on it for nine years before being added via crisis mode after I was in a car accident. Once we were added, it was another battle for personal care services. We have them now!
Congratulations on getting the increased hours, although I hate that you had to "fight" for them. I'm embroiled, still, in a similar push to get increased IHSS (in-home supportive services). So hard --
Elizabeth--It really is tough to deal with the red tape and all of the channels you have to go thru to get anything done once they're in "the system". I have a good friend in California whose son has been getting services for years, and she always says the state can do what they want, just don't touch his nursing hours! Hope you get your hours approved soon!! It makes such a difference for everyone.
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