Daniel's Gift

In the form of free hotel tickets for this , that is! Since the conference is being held at the Orlando Hilton, for us it's a windfall. ...

I'm typing from my phone while enjoying an outdoor breeze with Daniel, so please forgive typos. Daniel mouths his hands so much that h...

So far I'm pretty lukewarm about the caregivers we're getting from the agency I switched to. We're new at having help, so I have...

I decided to move my mother-in-law from the skilled nursing facility she's been in since December into a small, very nice assisted livin...

It was a year ago today that I started this blog. It was in March that we started having frequent daily help with Daniel for the first time ...

In 2010 we finally got on the state waiver for disability services. For the first time in over a decade, Daniel got some help with his daily...

I've had a few troubling days this week, but change is coming. Daniel meets his new caregiver tomorrow morning, and hopefully March wi...

The following is a note I posted on Facebook this morning. I am determined to find someone who fits the bill! Recently I hired an agency ...

Melody's been reading to Daniel almost every night for the past couple of weeks. I love the way he's peeking around to watch. As I l...

I read Nicola Schaefer's book about her daughter when Daniel was a baby, and I wrote about her impact on me here . Here's a video cl...

I spent (financed) big bucks on a Tempurpedic mattress for Daniel a couple of months ago so that I could move him out of his crib and into s...

In past posts I've talked about my fantasy of communal living for families who have kids with disabilities. The happenings at L'Arch...

Would I change him? I would and do provide him with the things that help him in this life, such as the medications that manage his seizures...

These photos were taken sometime in 2000 at Rockome Gardens in Illinois. My kids are two of the best things to happen to me in my half-centu...

The microarray test, that is. So, from here, no more testing until we can look at the entire genome. The capability is there, but scientis...

I called the genetics office today to see if Daniel's results from the microarray are in. I was put on hold four times (and man, is the ...

This video is pretty amazing. Daniel's on the couch with his iPad keyboard right now!

I'm enjoying Elizabeth's post this morning, and the song she shared is playing as I write. My last post was about changing some t...

I wasn't at work very long this morning when I got one of the calls I don't like. It was Rich on the phone telling me Daniel was in ...