Daniel's Gift

Daniel has PT, OT, and vision therapy at school. He was denied speech therapy years ago on the basis that his speech level is on par with hi...

I am fighting feelings of frustration (I'm pissed) stemming from an interaction I had with someone who assumes that my life with Daniel ...

A few weeks ago we saw our geneticist, Dr. Perszyk. He spent a lot of time watching Daniel, sizing up his unique characteristics, and decidi...

Lately I feel like I'm on high alert mode all of the time. I had a talk with myself this morning just to remind me that I can't chan...

It's hard to believe that a week has already gone by since we got the call from hospice telling us that my father-in-law died in his sle...

We’re back in school. Daniel started 7th grade with a new teacher, one who comes with high recommendations from people in the know. Two of h...

We're headed to the geneticist's office this morning. We first met Dr. P when Daniel was just four weeks old. Every few years or so ...

Yesterday was a rough day. A series of snafus landed at my feet all at once, and I was aggravated, angry and tired. Then the mail came. A ...

Daniel was a small baby. He finally reached the ten pound mark at one year of age, and that first year I put most of my energy into getting ...

My husband Rich's throat cancer is a 4a, which means it is in lymph nodes on both sides. We went to the follow-up after his biopsy and s...

Daniel and I made it through the first week of summer school. Both of us were jittery, and it took time to adjust to getting up so early aga...

If by Rudyard Kipling If you can keep your head when all about you Are losing theirs and blaming it on you; If you can trust yourself w...

It has been such a peaceful week. Melody is on her pilgrimage with the youth group to PA and NY, and it's my last week off before going ...

Daniel's caregiver is in the process of making his room more of a sensory den for him. She bought a black light, lava lamps, and glow-in...

Daniel loves to drum. He also loves to put his hands in his mouth. When he's doing the former, we get a lot less of the latter. So, I...

The other day my cousin Sue shared a song with me via Facebook. It's called Blessings, by Laura Story. One of the lyrics is, "thi...

Our last day of school was Friday, so today is the official start of summer for us. It was so nice to get up the lazy way today! Daniel and ...

Daniel loves water. He has ever since he was a fussy baby. When he cried, all I had to to was sink into a warm tub of water with him and he...